28 December 2009

Introduction

I would like this opportunity to say welcome to this simple blog on CFS and XMRV. There are a number of blogs, websites, profiles popping up all over the internet which deal with Chronic Fatigue Syndrome, Fibromyalgia, and the recent findings related to XMRV. The intention of this blog is to complement the information provided, to support people to understand what the implications of the recent and upcoming research are, what we can do as a united group and how to tackle this as individuals. This blog does not have all the answers for people about this illness, or the XMRV virus, however it will aim to provide a useful list of resources for people to go to find the information they want. There are many blogs and websites devoted to providing peer support to significant others, friends, work collegues and clinicians, and of course individuals themselves who have this disease, and although this is not intended as a peer support blog, it is my hope that people will get to know each other, share stories and become part of a greater CFS internet community.

Some of the topics I would like to discuss in future posts will include:

What does it mean to have Chronic Fatigue Syndrome
Working with a multidisciplinary team towards symptom management
Educating the medical profession
Maintaing purpose and meaning in your life
What does it mean to have a retrovirus?
Explaination of the retroviral process

If you have a subject you would like discussed, please email me or leave a comment and I will try to address it promptly. I will indicate areas which are my own opinion, and those which are standard practise to ensure people are clear on the information provided.

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